We were pleased to see the Huffington Post cover a reporter’s personal story on living with Raynaud’s since her teenage years. Like many of us, however, she wasn’t formally diagnosed until well into her 30’s.
The article titled Are Your Hands Almost Always Cold? You Might Have Raynaud’s Syndromeby Jill Brown includes experiences that are quite common for us Frosties: Wondering why the cold causes us so much more pain and discomfort than our friends, dealing with issues that get in the way of doing our jobs (she’s a TV reporter and has to work a camera outdoors). And the kicker – when a doctor tells her she has Raynaud’s, the best advice offered is “move someplace warmer” – gee thanks for the professional advice doc!
The story covers the difference between primary vs. secondary Raynaud’s, offers some lifestyle tips, and points our the author’s personal nemisis – the air conditioning at her gym. But what I love most about this piece is the list of activities Jill discovered she’d have to cross off her bucket list. How many of these items are on yours?
Keep up the great work with the newsletter, always a pleasure to read.
By J.C. (Canada)
Great Work with the Newsletter
I want to learn everything I can about this disease and to deal with it…Thank you for this website.
by M.R-B. (VA)
Thank You for This WebsiteG. Grant
Glad I found you! I live in Minnesota and I am really glad you test products that might help me. I’ll keep an eye on your web site this winter!
by C.G. (MN)
Glad I Found You!
Found the information on products to help me cope with this disease very informative and helpful. The product reviews are exactly what I was looking for.
Very Informative and Helpful
I’m thrilled I found your website – glad to know there are others just like me out there dealing with ‘cold’ fingers. Can’t wait to be included on your mailing list and newsletter. Thanks!
by S.S. (PA)
I’m Thrilled I Found Your Website
I am a huge fan of (the RA) site. They continue to keep me up to date with research, potential methods to help reduce the frequency of a flare up, as well as new gadgets that can help! It is definitely my “go to” for the latest and greatest for trust worthy information…I highly recommend this site!!!
by A.J. (TN)
Definitely My "Go To" for the Latest and Greatest
Thanks for all of your championing for patients.
by N.W. (UK)
Thanks For All of Your Championing for Patients
I was diagnosed with Raynaud’s in 2013. This website is very much appreciated. My doctor couldn’t really give me any tips on daily living, so your blog is invaluable.
Your Blog Is Invaluable
After years of issues, this group has been essential not only for providing helpful information, but also for support from others who suffer from Raynaud’s.
Helpful Information and Support
I am happy to finally come across a site like this…I really hope to learn more about this through other fellow members…and to try to help them with my experience.
by H.R. (NY)