While no product will work for everyone, it’s good to know that some Frosties are finding solutions that are bringing them relief.
Kristel (MO) is a runner and one of her tips shared on Facebook says she’s found that placing a disposable hand warmer (like Grabber® or HotHands® ) along the waist band of her running pants helps keep her core warm. And a warm core helps to reduce the frequency of attacks in her feet and hands. Thanks for the tip Kristel!
Peggy (TX) tells us she used to suffer from digital ulcers and lost one fingertip to gangrene. But since her doctor put her on amlodipine (Norvasc) and pentoxifylline (Trental) several years ago she’s not had one ulcer and stays nice and warm – it’s truly a blessing! She still has the occasional bad day when it’s colder (not often in Texas), and also has issues in cold grocery stores (don’t we all!), but generally she knows these medications are working for her, which is great news!
Editors note: Amlodipine (Norvasc) is a calcium channel blocker. This class of drugs is clinically proven to help us Frosties by opening the blood vessels so that the blood flows more freely. Pentoxifylline (Trental) works to change the shape of the blood vessels to improve the flow. Pentoxifylline has not consistently proven as effective as the calcium channel blockers, but we’re told it has less serious side effects, so there’s little downside to taking it, and it can be complementary to a calcium channel blocker.
Lisa (CO) discovered this past March that she has primary Raynaud’s. While her fingers do turn white, the areas most affected are her mouth and lips. She wakes up with her tongue stuck to the roof of her mouth and her lips feel like they are covered with latex, which she eventually associated with being numb. Her lips chapped daily and would then peel. She wrote to us asking what might help. As you can’t just add a sweater or gloves to help Lisa’s symptoms, we suggested she try one of our Sponsor’s products called Warm Skin, a cream that provides a protective barrier from the cold. Here’s what Lisa told us after using the product:
“Using the Warm Skin put moisture back into my lips and I began to feel them again. Now, I use the lotion a couple times as soon as I wake up to start the warming process and then 5 or 6 times during the day. There isn’t a sealer in the lotion, so 15 minutes after I put it on, I also use moisturizing Chapstick because it acts as a sealer so I do not have to use the lotion as often. The Chapstick also prevents me from tasting the lotion. This product has produced amazing results for me. For the first time in a very long time, my lips do not look bad due to being chapped and I don’t peel the skin off when it is dead. I highly recommend using this if you have any problems with keeping moisture in your lips.”
Thanks so much for sharing your experience Lisa, and glad we were able to help!
I’m very grateful I found this group, it helps me feel less alone with this .
by L.A. (Facebook)
Very Grateful I Found This Group
This is awesome! It’s great to see this so others can see exactly what we live with everyday. Thank you for making these!!
by S. M. (YouTube Follower)
This Video Is Awesome!
Thanks for all the info you guys provide.
by J.L. (CA)
Thanks for All the Info
This nonprofit made me realize I wasn’t alone, and referred me to some great gloves that have changed my life!!
Made Me Realize I Wasn't Alone
Very helpful site :)
by T.P. (Pinterest Follower)
Very Helpful Site
Great website. Thanks for the helpful information and products!
by C.S. (PA)
Hi, I’m glad I found this page, it helps to know that others suffer from this, too…Thank you for your page : ) x
by S.C. (Facebook Fan)
Helps to Know Others Suffer, Too
I have enjoyed belonging to the group (the Forum) and participating in it. Thanks for a wonderful site.
by L.D. (GA)
Thanks for a Wonderful Site
…None of my local doctors new what was wrong with me…Your website helped me learn more about it, and I am happy to know I’m not the only Smurf around.
by L.G. (CA)
Website Helped Me Learn More
I haven’t spent much time on this forum but I have to say I have learned so much about my own condition…Today I used a tip that I read on this site..I am happy to say that it works!
by P.M. (Raynaud’s Forum Member)