For Raynaud’s Awareness Month this October, we’re launching a new campaign titled “Don’t Turn a Cold Shoulder to Painful Fingers.” We’re urging sufferers, plus their doctors, friends, family and co-workers not to dismiss the pain Raynaud’s sufferers endure.
How many Frosties have been told by their physicians “move to Florida” or “just stay warm,” without further examination? My personal experience was with a doctor who told me “You have poor circulation, wear support hose.” I had to put my foot down and threaten not to leave her office until she could tell me what was wrong or refer me to someone who could.
Often family, friends and co-workers may be unsympathetic to the pain of a Raynaud’s attack. Family members might think sufferers are just trying to get attention. Co-workers often grovel when asked to adjust the thermostat. Friends comment that wearing gloves in 60-degree weather looks silly.
Stand Up for the Right to Be Taken Seriously
Raynaud’s is a widespread disorder. It affects 5 to 10% of the population, 20% of all women of childbearing age (nine out of ten sufferers are female), but only 10% seek treatment. And often when they do, or attempt to make their environment more comfortable, they get pushback.
In celebration of Raynaud’s Awareness Month, let’s stand up for our right to be taken seriously. Let’s help fellow Frosties understand they are not alone, that they are not imagining or exaggerating their pain, and they don’t have to accept the cold shoulder treatment.
Please Share Your Cold Shoulder Stories
We’d like to hear from you with your stories of being dismissed by people you know or care about and their lack of understanding or belief that your pain and discomfort has a medical explanation.
You can add your experiences to the comments section below, or share them on our Facebook page. Together we can stop the “Cold Shoulder” treatment!
Keep up the great work with the newsletter, always a pleasure to read.
By J.C. (Canada)
Great Work with the Newsletter
I want to learn everything I can about this disease and to deal with it…Thank you for this website.
by M.R-B. (VA)
Thank You for This WebsiteG. Grant
Glad I found you! I live in Minnesota and I am really glad you test products that might help me. I’ll keep an eye on your web site this winter!
by C.G. (MN)
Glad I Found You!
Found the information on products to help me cope with this disease very informative and helpful. The product reviews are exactly what I was looking for.
Very Informative and Helpful
I’m thrilled I found your website – glad to know there are others just like me out there dealing with ‘cold’ fingers. Can’t wait to be included on your mailing list and newsletter. Thanks!
by S.S. (PA)
I’m Thrilled I Found Your Website
I am a huge fan of (the RA) site. They continue to keep me up to date with research, potential methods to help reduce the frequency of a flare up, as well as new gadgets that can help! It is definitely my “go to” for the latest and greatest for trust worthy information…I highly recommend this site!!!
by A.J. (TN)
Definitely My "Go To" for the Latest and Greatest
Thanks for all of your championing for patients.
by N.W. (UK)
Thanks For All of Your Championing for Patients
I was diagnosed with Raynaud’s in 2013. This website is very much appreciated. My doctor couldn’t really give me any tips on daily living, so your blog is invaluable.
Your Blog Is Invaluable
After years of issues, this group has been essential not only for providing helpful information, but also for support from others who suffer from Raynaud’s.
Helpful Information and Support
I am happy to finally come across a site like this…I really hope to learn more about this through other fellow members…and to try to help them with my experience.
by H.R. (NY)