We understand that this giving season is challenging for many. So for those of you who can’t help us with financial support, please consider helping us to spread the word about Raynaud’s in our fight against the cold.
You already know about Raynaud’s, but most sufferers – 90% – don’t know they have a medical condition, and so they don’t seek medical help. That’s 9 out of 10 of the 15 million+ people estimated to have Raynaud’s! Awareness and medical attention are important not only to make a sufferer more comfortable, but also to prevent permanent blood vessel damage and to rule out more serious autoimmune diseases such as scleroderma, lupus and rheumatoid arthritis.
We’re Making Progress in a Difficult Year
We’re making great progress in outreach. Our Raynaud’s Awareness Month press announcement in October was posted at 94 media outlets representing a total potential audience of nearly 750 million. That’s our highest reach ever thanks to our latest educational video featuring our mascot Shivers being picked up by YouTube. To date, over 15,000 people have taken our Raynaud’s Quiz, engaging participants in recognizing Raynaud’s symptoms and further promoting the need to take Raynaud’s seriously.
We are gaining momentum, but, like many of you, we’ve also been financially challenged this year. A number of Corporate Sponsors had to cut back on their contributions because of tough times. Foundations are also cutting back and delaying grants.
Unlike other healthcare organizations, we’re limited in our resource options: We can’t actively seek funds from the pharmaceutical community because there are currently no FDA-approved drugs for Raynaud’s. All medications currently prescribed for treatment are issued “off-label” – and that means their manufacturers cannot legally support our efforts.
Increasing awareness can help us gain this support. If large numbers of sufferers seek treatment, the medical community will take notice, resulting in the search for better treatment options, soliciting research dollars and prodding the drug companies to find a cure.
Join Us in the Fight Against the Cold: Become a Frostie Champion in Spreading the Word
We’re a small, all-volunteer organization. We can’t do this job alone. But together, we can reach more of the millions who suffer the pain of Raynaud’s when they’re cold or stressed. How can you help? Here are some suggestions:
Be direct with friends, family and colleagues about the fact that you have Raynaud’s and how it affects you.
Proudly wear our logo items (masks, sweatshirts, jewelry, scarves, gloves) and tell others about Raynaud’s.
When you shop on Amazon, go to AmazonSmile and choose the Raynaud’s Association as a recipient of a portion of the proceeds. (Use the link above and you’ll be all set!)
Consider asking for a donation in your name to the Raynaud’s Association when it’s your birthday or for a gift-giving occasion like the upcoming holidays.
For Those Who Can Donate, We Welcome Your Help
As an all-volunteer organization, there are no salaries, no overhead, no hefty administrative costs. All of our resources are devoted to supporting the Raynaud’s community. Every dollar you donate will go directly to helping our cause.
If you can, please donate now.Click to make a donation by credit card, or text SHIVERS to 64600 for secure mobile donations.
Your support of either time or money can help enhance the lives of millions of sufferers.
Lynn Wunderman Chairman and Founder Raynaud’s Association, Inc.
Keep up the great work with the newsletter, always a pleasure to read.
By J.C. (Canada)
Great Work with the Newsletter
I want to learn everything I can about this disease and to deal with it…Thank you for this website.
by M.R-B. (VA)
Thank You for This WebsiteG. Grant
Glad I found you! I live in Minnesota and I am really glad you test products that might help me. I’ll keep an eye on your web site this winter!
by C.G. (MN)
Glad I Found You!
Found the information on products to help me cope with this disease very informative and helpful. The product reviews are exactly what I was looking for.
Very Informative and Helpful
I’m thrilled I found your website – glad to know there are others just like me out there dealing with ‘cold’ fingers. Can’t wait to be included on your mailing list and newsletter. Thanks!
by S.S. (PA)
I’m Thrilled I Found Your Website
I am a huge fan of (the RA) site. They continue to keep me up to date with research, potential methods to help reduce the frequency of a flare up, as well as new gadgets that can help! It is definitely my “go to” for the latest and greatest for trust worthy information…I highly recommend this site!!!
by A.J. (TN)
Definitely My "Go To" for the Latest and Greatest
Thanks for all of your championing for patients.
by N.W. (UK)
Thanks For All of Your Championing for Patients
I was diagnosed with Raynaud’s in 2013. This website is very much appreciated. My doctor couldn’t really give me any tips on daily living, so your blog is invaluable.
Your Blog Is Invaluable
After years of issues, this group has been essential not only for providing helpful information, but also for support from others who suffer from Raynaud’s.
Helpful Information and Support
I am happy to finally come across a site like this…I really hope to learn more about this through other fellow members…and to try to help them with my experience.
by H.R. (NY)