*** ADVOCACY ALERT *** NORD Calls Bill Passed By Senate Today Most Important Since Orphan Drug Act Praises Senate for Addressing Needs of Rare Disease Patients May 22, 2012, WASHINGTON, DC— The National Organization for Rare Disorders (NORD) applauds legislation passed today by the U.S. Senate — S 3187, the Food and Drug Administration Safety
February 29, 2012 is Rare Disease Day, an annual event observed worldwide on the last day of February each year. The purpose of this day is to raise awareness of rare diseases as a public health issue. In the U.S., a rare disease is defined as affecting fewer than 200,000 people. There are nearly 7,000
Rare Disease Day was established in 2008 to raise awareness about rare diseases, which together impact millions of people worldwide. While the Raynaud’s population is too large to be considered in this category, many among us with secondary Raynaud’s suffer from these rare medical conditions.