This year marks the 25th year of service for the Raynaud’s Association.
It was 25 years ago that we launched as a local self-help organization with a meeting of three Raynaud’s sufferers in our founder’s living room, sharing stories, product tips and just enjoying the feeling that we weren’t alone in this cold, cold world!
This past year, our public service announcements reached over 383 million people, our Raynaud’s Awareness Month press was shared by publications reaching an audience of nearly 90 million readers. Over 315,000 visitors came to our web site in 2016 to learn more about Raynaud’s, and our social media pages reached a combined audience of over 50,000 followers a month.
We’ve come a long way in 25 years, but there’s still a big job to be done in spreading the word: Of the estimated 15 to 30 million sufferers in the U.S. alone, research shows only 10% are aware that their pain and discomfort has a medical explanation and seek treatment.
In addition to our efforts in building awareness , we work with manufacturers to design and test products that can help Raynaud’s sufferers live warmer and more comfortable lives. We publish and distribute educational materials on Raynaud’s to help newly-diagnosed patients understand their treatment options and lifestyle strategies that can make a difference in their quality of life.
If you’re reading this message, we’ve probably touched your life in some way. And we thought Valentine’s Day would be the perfect time for us to celebrate our 25th Anniversary by working together to help spread the warmth. Here’s how: Ask friends and family to share some love for a cause you care about.
Share our short code SHIVERS that can be texted to 64600 for mobile donations
Hold a lunch or a dinner asking friends and family to support our cause
Please help us celebrate this event by getting others to spread the love for our cause. In honor of our anniversary, set a minimum goal of $250. If 100 Frosties raise $250 we’ll achieve our $25,000 goal!
If you’re not comfortable recruiting on our behalf, that’s OK. You can always spread a little love by donating directly at the link below. Every $25 helps us toward our goal.
We can all use a little more warmth in our lives, so this Valentine’s Day, help us in our mission to spread the word about Raynaud’s year-round!
Keep up the great work with the newsletter, always a pleasure to read.
By J.C. (Canada)
Great Work with the Newsletter
I want to learn everything I can about this disease and to deal with it…Thank you for this website.
by M.R-B. (VA)
Thank You for This WebsiteG. Grant
Glad I found you! I live in Minnesota and I am really glad you test products that might help me. I’ll keep an eye on your web site this winter!
by C.G. (MN)
Glad I Found You!
Found the information on products to help me cope with this disease very informative and helpful. The product reviews are exactly what I was looking for.
Very Informative and Helpful
I’m thrilled I found your website – glad to know there are others just like me out there dealing with ‘cold’ fingers. Can’t wait to be included on your mailing list and newsletter. Thanks!
by S.S. (PA)
I’m Thrilled I Found Your Website
I am a huge fan of (the RA) site. They continue to keep me up to date with research, potential methods to help reduce the frequency of a flare up, as well as new gadgets that can help! It is definitely my “go to” for the latest and greatest for trust worthy information…I highly recommend this site!!!
by A.J. (TN)
Definitely My "Go To" for the Latest and Greatest
Thanks for all of your championing for patients.
by N.W. (UK)
Thanks For All of Your Championing for Patients
I was diagnosed with Raynaud’s in 2013. This website is very much appreciated. My doctor couldn’t really give me any tips on daily living, so your blog is invaluable.
Your Blog Is Invaluable
After years of issues, this group has been essential not only for providing helpful information, but also for support from others who suffer from Raynaud’s.
Helpful Information and Support
I am happy to finally come across a site like this…I really hope to learn more about this through other fellow members…and to try to help them with my experience.
by H.R. (NY)