Frostie on a MissionWe discovered a web site called  It was created by a fellow Frostie on a mission who has lived with the condition for over 20 years.  She published this site to share her story of discovery, frustrations with the medical community, and to offer strategies she’s developed to stay warm and ward off attacks.

Most Frosties will identify with several of the events experienced by the author, including:

  • Dressing to look “professional” at the expense of warmth and comfort
  • Visits to doctors without the knowledge and experience to offer useful advice and treatment options
  • Being labeled the “Touch of Death” by a spouse when touched
  • Familiar triggers in everyday life (grocery stores, grabbing cold items and surfaces, severe stress)
  • Seasonal challenges (How many Halloween costumes look good with thick,