We discovered a web site called ColdHands.net. It was created by a fellow Frostie on a mission who has lived with the condition for over 20 years. She published this site to share her story of discovery, frustrations with the medical community, and to offer strategies she’s developed to stay warm and ward off attacks.
Most Frosties will identify with several of the events experienced by the author, including:
Dressing to look “professional” at the expense of warmth and comfort
Visits to doctors without the knowledge and experience to offer useful advice and treatment options
Being labeled the “Touch of Death” by a spouse when touched
Familiar triggers in everyday life (grocery stores, grabbing cold items and surfaces, severe stress)
Seasonal challenges (How many Halloween costumes look good with thick, fuzzy socks?)
She offers 33 Warm Up tips , many of which most Raynaud’s sufferers may have discovered on their own (dress in layers and cover as much exposed skin as possible, windmill the arms, use disposable hand warmers, warm water over cold fingers, etc.). But she does offer some suggestions that may be new information for fellow Frosties. Here are a few of them:
Inside Sleeves vs. Outside Pockets – She suggests tucking your hands inside your sleeves, as they are already warm from your body heat. Outside pockets are “outside” your garment and therefore inherently colder. There’s some logic to this!
Hand Muffs – These were fashionable in earlier generations, and offer great protection from the elements if you don’t need instant access to your paws for dexterity. We agree muffs are a great option if you’re outside watching a sporting event or out walking for some fresh air and exercise. Check out this heated muff from G-Tech Apparel. It’s one of the best heated products we’ve tested to date!
Larger Footwear – The author (wish she gave her name!) recommends buying shoes/boots a little larger to leave room for warm air to circulate. Another reason we suggest larger footwear is that feet can swell during attacks, and tight shoes will constrict your circulation, so give your toes some breathing room!
Clothes Dryers – These appliances do more than just dry wet laundry, they offer warm clothes on demand. She suggests warming up bed clothes and blankets for warmth at bedtime. We’ve had sufferers tell us they put their gloves, socks and outerwear in the dryer for a few minutes before leaving the house on frosty days. Lots of creative ways to use dryers for more than just drying!
Physical Activity – Beyond standard exercise, which is good for getting the circulation moving, any activity that gets you moving and/or exposes you to warmth can be beneficial. Some examples: Washing dishes in warm water, folding hot laundry, cooking with the oven going (heats up the room!), vacuuming involves some aerobic movement and weight lifting (pending the size of your machine!), and more.
Running in Bed – This one builds on the last point. The author says she’s been doing this since she was a child: “While laying in bed on your side, start pumping your legs up and down as if you’re running in one spot and do it as fast and as long as you possibly can. Try also adding your arms into the mix by vigorously rubbing your hands up and down your thighs while you run, I find that especially effective.” Personally, I prefer using an electric mattress pad or blanket, but for those who need extra heat or prefer creating their own cocoon of warmth, give it a try!
Chestnuts – This concept combines warmth with an easy do-it-yourself massage technique. Buy or collect some fallen chestnuts. Peel off the outer layer, throw them all into a paper bag, microwave for a couple of minutes, then sit with your feet in the bag and roll your feet back and forth over the warm chestnuts. Works with hands, too, or just use the bag as a comfy warmer.
We’re grateful to the author for putting all of this material together and hope you find some good ideas to keep you warm and toasty!
Editor’s notes: We want to clarify a couple of the questions in the site’s Welcome section. The author uses these questions to help readers identify with being Raynaud’s sufferers. The first question asks: “Allergic to the cold?” Raynaud’s is not an allergic reaction to the cold. There is another condition that is also extremely sensitive to cold temperatures called Cold or Physical Urticaria. With this condition, a sufferer is literally allergic to cold temperatures. Symptoms involve breaking out in a rash and itching. Here’s the description: “Cold or physical urticaria is a condition in which red allergic skin lesions and itching are produced by exposure to cold temperatures, water, or mild trauma.” Raynaud’s and cold urticaria are sometimes confused even in the medical community, so it’s important to know the difference and seek the proper treatment.
The second question she asks is “Do you have poor circulation?” While Raynaud’s can be caused by vascular disorders, or circulation can be impaired by more serious primary autoimmune diseases, most sufferers with the primary form of Raynaud’s have normal circulation. It’s just an issue during attacks, and the attacks are a normal human response to cold or stress sometimes referred to as the fight or flight syndrome, a natural survival response when the body feels threatened. For reasons still unexplained, Raynaud’s sufferers have a much lower threshold for this reaction. And when sufferers reach their temperature or stress threshold, the blood vessels constrict in the extremities in order to send blood to the body’s core for protecting their vital organs. Once the attack is over ( sufferer gets warm or calm again), normal circulation resumes.
I’m very grateful I found this group, it helps me feel less alone with this .
by L.A. (Facebook)
Very Grateful I Found This Group
This is awesome! It’s great to see this so others can see exactly what we live with everyday. Thank you for making these!!
by S. M. (YouTube Follower)
This Video Is Awesome!
Thanks for all the info you guys provide.
by J.L. (CA)
Thanks for All the Info
This nonprofit made me realize I wasn’t alone, and referred me to some great gloves that have changed my life!!
Made Me Realize I Wasn't Alone
Very helpful site :)
by T.P. (Pinterest Follower)
Very Helpful Site
Great website. Thanks for the helpful information and products!
by C.S. (PA)
Hi, I’m glad I found this page, it helps to know that others suffer from this, too…Thank you for your page : ) x
by S.C. (Facebook Fan)
Helps to Know Others Suffer, Too
I have enjoyed belonging to the group (the Forum) and participating in it. Thanks for a wonderful site.
by L.D. (GA)
Thanks for a Wonderful Site
…None of my local doctors new what was wrong with me…Your website helped me learn more about it, and I am happy to know I’m not the only Smurf around.
by L.G. (CA)
Website Helped Me Learn More
I haven’t spent much time on this forum but I have to say I have learned so much about my own condition…Today I used a tip that I read on this site..I am happy to say that it works!
by P.M. (Raynaud’s Forum Member)