In The News

We Need a Warm Helping Hand

A woman grew up cold much of the time as a child.  She didn’t understand why she couldn’t wear the strappy little dresses or cute sandals worn by her friends without being in pain.  As she grew into her mid-thirties, suddenly the pain in her feet on cold days was unbearable.  She would go barefoot

2023-06-23T16:09:31-04:00December 1st, 2014|In The News, Stories|1 Comment

How and Why I Ran 50 Miles for Raynaud’s Awareness

By Rachel Boehm You may have heard I dedicated my first 50-mile run, the JFK 50, to Raynaud’s awareness. Many of those who heard about this via the Raynaud’s Association’s Facebook page asked about my strategy for staying warm. Here’s what I did (for more tips on endurance events, check out my blog post geared

2016-08-15T15:50:31-04:00November 27th, 2014|Coping Strategies, In The News, Stories|Comments Off on How and Why I Ran 50 Miles for Raynaud’s Awareness

Patients With Scleroderma Wanted for Clinical Trial

We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site.   The first site is in Encinitas,

2015-04-03T19:23:33-04:00November 17th, 2014|In The News|Comments Off on Patients With Scleroderma Wanted for Clinical Trial
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