In The News

How and Why I Ran 50 Miles for Raynaud’s Awareness

By Rachel Boehm You may have heard I dedicated my first 50-mile run, the JFK 50, to Raynaud’s awareness. Many of those who heard about this via the Raynaud’s Association’s Facebook page asked about my strategy for staying warm. Here’s what I did (for more tips on endurance events, check out my blog post geared

2016-08-15T15:50:31-04:00November 27th, 2014|Coping Strategies, In The News, Stories|Comments Off on How and Why I Ran 50 Miles for Raynaud’s Awareness

Patients With Scleroderma Wanted for Clinical Trial

We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site.   The first site is in Encinitas,

2015-04-03T19:23:33-04:00November 17th, 2014|In The News|Comments Off on Patients With Scleroderma Wanted for Clinical Trial

Spoof Article Not So Funny to Frosties

The digital news publication The Onion is known for its satirical articles on everything from politics to local news.  One of our Facebook followers found this recent spoof in The Onion reporting a young woman in Providence, Rhode Island who buried herself in her living room under a large blanket and vowed to stay there

2014-11-02T15:50:10-05:00November 2nd, 2014|In The News|Comments Off on Spoof Article Not So Funny to Frosties

20 Things Only People With Cold Hands Understand

We found this list on BuzzFeed and thought it could have been written by a fellow Frostie.  What a response!  It's one of our most talked about posts on Facebook:  seen by over 9,000 people, generating 263 likes and 217 shares. We received many comments like:  "So true."  "The story of my life."  "I feel

2014-08-23T19:05:11-04:00August 22nd, 2014|In The News|Comments Off on 20 Things Only People With Cold Hands Understand

Raynaud’s Mascot Response

In our Spring 2014 issue of Cold Cuts, we introduced this cute Blue-footed Booby (an Eastern Pacific seabird) as a possible mascot for the Raynaud's Association.  (Here's the original post in case you missed it.) Turns out he generated a lot of positive feedback from fellow Frosties.  Most loved the idea of making him an

2019-08-23T14:48:44-04:00August 16th, 2014|In The News|Comments Off on Raynaud’s Mascot Response
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