By Rachel Boehm You may have heard I dedicated my first 50-mile run, the JFK 50, to Raynaud’s awareness. Many of those who heard about this via the Raynaud’s Association’s Facebook page asked about my strategy for staying warm. Here’s what I did (for more tips on endurance events, check out my blog post geared
Catherine (Facebook Fan) suggests: "I have been known to use my nose when my finger doesn't register on a touch screen. :-)" We've all been there, trying to punch numbers into the ATM and nothing happens. It may look funny, but could be effective! Claire (Facebook Fan) shared the following idea: "Tip for anyone working in
We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site. The first site is in Encinitas,
This past week two major news groups published articles promoting hot products any Raynaud's sufferer would love! The Huffington Post article is titled "21 Ridiculously Hot Products That Every Ridiculously Cold Person Will Want" - that's us! While it includes some products we've featured in past newsletters, like the hand-warming Toasty Mug and heated toilets,
We found a heated steering wheel cover with great potential for Raynaud's sufferers. This is one product in big demand by the Raynaud's community.
