Raynaud’s Syndrome

How and Why I Ran 50 Miles for Raynaud’s Awareness

By Rachel Boehm You may have heard I dedicated my first 50-mile run, the JFK 50, to Raynaud’s awareness. Many of those who heard about this via the Raynaud’s Association’s Facebook page asked about my strategy for staying warm. Here’s what I did (for more tips on endurance events, check out my blog post geared

2016-08-15T15:50:31-04:00November 27th, 2014|Coping Strategies, In The News, Stories|Comments Off on How and Why I Ran 50 Miles for Raynaud’s Awareness

Raynaud’s Member Tips – Fall 2014

Catherine (Facebook Fan) suggests:  "I have been known to use my nose when my finger doesn't register on a touch screen. :-)"  We've all been there, trying to punch numbers into the ATM and nothing happens.  It may look funny, but could be effective! Claire (Facebook Fan) shared the following idea:  "Tip for anyone  working in

2019-08-26T12:42:42-04:00November 25th, 2014|Coping Strategies, Hot Products|Comments Off on Raynaud’s Member Tips – Fall 2014

Patients With Scleroderma Wanted for Clinical Trial

We have been contacted by a pharmaceutical company to help recruit patients for a clinical trial being conducted in patients with Raynaud’s phenomenon secondary to scleroderma/systemic sclerosis. The study medication is a topical cream that will be applied to the hand. Participation will require travel to a clinical site.   The first site is in Encinitas,

2015-04-03T19:23:33-04:00November 17th, 2014|In The News|Comments Off on Patients With Scleroderma Wanted for Clinical Trial

Hot Products for Fall 2014

With a chill in the air, we're all searching for new products to keep us comfortable and toasty for the season.  Here are a few items we've discovered that Frosties may want to try - if you can find them, as some are selling out fast! Hand Warming Flashlight - This is a multi-tasking product

2021-03-10T18:07:11-05:00November 7th, 2014|Hot Products|Comments Off on Hot Products for Fall 2014
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