Jacqueline (CA) has had Raynaud’s since childhood. More recently she developed some additional health issues and cryotherapy treatment was recommended to her. She tried it and tells us “It was the worst thing I have ever been through in my life. I told the people at the facility about my disease but they said I would be fine. Strongly urge all members of this Association to never engage in this therapy.” She said the treatment lasted just three minutes. She was wrapped in two pairs of socks, UGG boots, two pairs of gloves plus cryo-gloves over them. It took her over five hours to get the blood back in her fingers and toes. Jacqueline is the first Frostie to tell us about their experience with cryotherapy, so we wanted to share it. Raynaud’s is specifically listed as a contraindication for cryotherapy, so beware if it’s recommended for you!
Kristen (NY) tells us she’s started a journal of her attacks to help better understand the phenomenon and its triggers. Strategies that help her include: Dressing warmly, putting hands and feet in warm water, massages to help blood flow, deep breathing to reduce stress, acupuncture (improves blood flow), and sun bathing (her favorite). Great idea Kristen!
Thank you for helping me understand why I am so messed up! I am so grateful to know I am not alone!
by L.O. (WI)
So Grateful to Know I'm Not Alone!
I am thankful to have the Raynaud’s Association as a very important source of information, without you guys many of us would never know of the useful tips and information you share!
by J. W. (Canada)
Learned So Much Just By Reading Through the Site
Love them for keeping us updated on products, and sharing stories of other people who live with Raynaud’s.
Love Them for Keeping Us Updated and Sharing Stories
So thankful for this page (Facebook) full of info and great products.
by A.M. (TX)
I went to your website today for the first time and was very impressed…I’m anxious to learn how to control the symptoms and am anxious to receive your newsletter.
by B.C. (NJ)
Was Very Impressed
…relieved to know what it is…comforted to know there are other folks that have this condition…nice to have a place to share what works for us.
by J.J. (VA)
A Place to Share What Works for Us
This site is truly a blessing…you’ve helped me a lot!
This Site is Truly a Blessing!
Thanks so much for all the information. Raynauds.org has been a terrific resource.
The Forum has been so helpful…Thank you for all who are involved. I am grateful.
by D.C. (CA)
The Forum Has Been So Helpful
I had no idea there was a name for what I’d been experiencing…found the Raynaud’s Association. THERE I found useful information & was connected with a network of support. I’ve learned so much & am so grateful to have this resource.
by S. F. (Facebook Fan)