Jacqueline (CA) has had Raynaud’s since childhood.  More recently she developed some additional health issues and cryotherapy treatment was recommended to her.  She tried it and tells us “It was the worst thing I have ever been through in my life. I told the people at the facility about my disease but they said I would be fine. Strongly urge all members of this Association to never engage in this therapy.”  She said the treatment lasted just three minutes. She was wrapped in two pairs of socks, UGG boots, two pairs of gloves plus cryo-gloves over them. It took her over five hours to get the blood back in her fingers and toes.  Jacqueline is the first Frostie to tell us about their experience with cryotherapy, so we wanted to share it.  Raynaud’s is specifically listed as a contraindication for cryotherapy, so beware if it’s recommended for you!

Kristen (NY) tells us she’s started a journal of her attacks to help better understand the phenomenon and its triggers. Strategies that help her include:  Dressing warmly, putting hands and feet in warm water, massages to help blood flow, deep breathing to reduce stress, acupuncture (improves blood flow), and sun bathing (her favorite). Great idea Kristen!

What are your ideas?  What products work for you?  Write to: info@raynauds.org.  Post them in our Discussion Forum.  Or join us on Facebook.

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