After knowing for years that something was wrong but not having enough to go on to prove it, my pediatrician suspected that my then 5 year old had Juvenile Arthritis. It took a long time to diagnose her- almost a year!
Eventually she was also diagnosed with scleroderma and mixed connective tissue disease. Her new rheumatologist had recently put her on Naproxen and Methotrexate to help manage her pain and inflammation when we first noticed other changes. I went in her room to help her with her socks when I noticed that she had one toe that was bright white. By the time I called my husband in to look, it was back to normal. A bit irritated with me, he went back to what I was doing like he didn’t believe me. The next night he called me into her room. This time, her whole foot was white. As we were sitting there trying to figure this out, it started to change to purple. Needless to say, we panicked! I called her rheumy the next day, and they said that it was most likely Raynaud’s. Eventually they were able to see first hand in the office, though just in case, I take pictures of her bad episodes and show them in the office or email them to the nurse.